Early Literacy Research Library (ELRL) - Profile

Dee Daniels, RN MSN, CPNP-PC Senior Instructor

Contact Email: dee.daniels@childrenscolorado.org


University of Colorado School of Medicine
Aurora, Colorado
Faculty, Senior Instructor

Children's Hospital Colorado
Aurora, Colorado
RN, CPNP-PC. Program Director Sie Center for Down Syndrome


I am a faculty of the University of Colorado School of Medicine. I am currently the nurse practitioner and Program Director for the Sie Center for Down Syndrome at Children’s Hospital Colorado. Prior to this position I was a nurse practitioner in Child Neurology at Children’s Hospital Colorado as well as at Children’s Hospital Medical Center, Cincinnati, Ohio. I was a Pediatric Instructor at Good Samaritan Hospital School of Nursing for 17 years prior to my clinical positions. In this role I taught Pediatrics and Obstetrics and developed several community education programs including a sibling preparation program, a latch-key child educational series and an educational program for adults interested in adopting a child. I started the Reach Out and Read Program in our Down syndrome clinic, the first clinic to have the ROR program in a Down syndrome clinic. I also serve on the Board or Reach Out and Reach Colorado.

Research Interests

  • Reach out and Read (ROR)
  • ROR in early infancy
  • ROR in the NICU
  • Anticipatory Guidance
  • Modelling
  • Early Relational Health
  • Diversity, Equity, and Inclusion
  • Trust
  • Shared Reading
  • Community
  • Libraries and Public Resources
  • Medical Education/Training
  • School Readiness and Educational Outcomes
  • Children with disabilities
  • Pediatric Neurology
  • Down Syndrome

Past Research

1. Daniels, D., Knupp, K., Benke, T., Wolter-Warmerdam, K. and Hickey, F. Infantile spasms in children with Down syndrome: Identification and treatment response. Global Pediatric Health 2018; 6:1-8.

2. Daniels, D., Wolter-Warmerdam, K., Holland, S., and Hickey, F. Reach Out and Read implementation in a pediatric Down syndrome clinic. Journal of Pediatric Health Care. 2021.

3. Daniels, D. A., Marmolejo, J., Liu, E., Prince, G., Wolter-Warmerdam, K., & Hickey, F. (2018). Screening for Celiac Disease in Children with Down Syndrome. Journal of Pediatric Health Care, 32(4), 328-329.

4. Harvey, S., Wolter-Warmerdam, K., Hickey, F., Daniels, D., DomBouran, M., Abmruso, D., and McKinney, C. Blood counts in children with Down syndrome. Pediatric Blood and Cancer. 2022 Sept; DOI: 10.1002/pbc.30002.

5. Hickey, F., Wolter-Warmerdam, K., Winders, P., Holland, S., Kelminson, K., Daniels, D. Ten-year impact of a Down syndrome pediatric clinic. Journal of Policy and Practice in Intellectual Disabilities. 2023.

6. Hickey, F., Wolter-Warmerdam, K., Hickey, E., Yoon, J. and Daniels, D. Pediatric comorbidities and medical complications identified in children with Down syndrome. Journal of Down Syndrome & Chromosome Abnormalities 2017; 3:124.

7. Liu, E., Wolter-Warmerdam, K., Marmolejo, J., Daniels, D., Prince, G., and Hickey, F. Routine screening for celiac disease in children with Down syndrome improves case findings. Journal of Pediatric Gastroenterology and Nutrition 2020; 71:2, 252-256.

8. Nightengale, E., Yoon, P., Wolter-Warmerdam, K., Daniels, D. and Hickey, F. Understanding hearing and hearing loss in children with Down syndrome. American Journal of Audiology 2017;26: 301-308.

9. Nightengale, E., Wolter-Warmerdam, K., Yoon, P., Daniels, D., and Hickey, F. Behavioral audiology procedures in children with Down syndrome. American Journal of Audiology, 2020;29:3.

Ongoing Research

Currently have second research project looking at a parent feedback (survey) regarding the caregiver feedback of the Reach Out and Read Program in a Down Syndrome pediatric specialty clinic.

Future Research

Down syndrome patients with Duchenne Muscular Dystrophy